Could it have been improperly diagnosed endometriosis that was missed before hysterectomy?

Question

1991-ectopic pregnancy & L tube/ovary removed, 1995-conal biopsy CIN 3/tubal ligation/adhesions removed, 1996-partial hysterectomy (R ovary remains) due to chronic abdominal/pelvic pain/distension/adhesions, 1998-rectocele & enterocele repair/adhestions removed, 1999-5 cm ovarian cyst identified (not removed due to risk caused by adhesions), 2006--CT scan reveals "somewhat diffuse" pelvic mass large enough to be originally mistaken for a "uterus tilted slightly to the right".
My sister was diagnosed with very bad endo; after she mentioned that my symptoms were similar, I did research. Endo diagnosis is difficult, esp. for a Dr not familiar w/ endo. Is it possible that I could have had endo implants w/ implants left over after hysterectomy? Endo implants can cause more adhesions, cysts, abdom distension. Even hyst doesn't cure endo. No insurance; paid cash for CT; hard to find Dr who takes cash. I have periodic abd distension, chronic pain, not eased by BM, so not IBS. Anybody?

Answer 1

I suffer from Endometriosis and had a full womb/both ovaries/ cervix/ tubes removal two years ago but I STILL have the disease. I went back for my check up after 8 weeks and I was told very bluntly,'You still have the Endo in your bowel, bladder, ligaments and loads on your hernia scar tissue.'

I am still suffering two years on, and I take Livial-a very mild HRT, but this makes me so bad I can hardly walk. Now my doctor has told me to come off the hormones and I'm hoping it will settle down until something can be sorted. I can't go without hormones for long because I have a fractured separated pelvis and am already getting signs of Osteoporosis and Arthritis due to early menopause, besides severe menopausal symptoms.

YOU CAN have Endo after a hysterectomy, DO NOT let anyone tell you otherwise. LOOK ON THE NET.

Answer 2

Hi Kerry , I too have endo and I understand how it makes lifestyles depressing, discomfort so dangerous you bodily throw up and all of the different signs. I have had this for two decades and the one manner I controlled to cut down it was once to do away with animal merchandise. Especially dairy and purple meat. I attempted getting rid of them for different motives as soon as and the aspect results was once not more endo after a few months. It could also be accident however I have seeing that heard of others who've attempted it and had good fortune. Some practitioners are actually recommending it. I might endorse writing a record of lunches and dinners you'll have earlier than establishing as it may be rough to regulate in the beginning however you quickly get used to it and it's so valued at it. Vanilla rice milk is a well option, no longer so bland as undeniable rice milk. Soya has the equal dangerous end result on me. I wasn't capable to paintings for five years as I had an excessive amount of ill time and saved geting sacked. e-mail me for a few ethical aid if you want it - well good fortune, you're no longer on my own!

Answer 3

Endo may be difficult for a dr to dx symptomatically, but it is pretty obvious during a lap or esp a major surgery like a hyterctomy to miss it. I don't know why a hysterectomy would not cure endo. endo is build up form the lining of your uterus (IE your period) a normal person gets rid of all the lining when she gets her period, a person with endo it builds up. with out a uterus you don't get a period, hence no lining (which is also why pg is a temporary "cure" for endo)

I have seen the pictures from my lap, and my endo looked like thick cobwebs all over the place. pretty hard for a dr to miss. unless you had it and the dr didn';t care to mention it - I don't think its possible for it to occure after a hyterectomy.

Answer 4

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